When I think about my daughter's diagnosis, an incurable rare autoimmune disease which requires monthly infusions, I feel sad. She misses school for treatments, fatigues easily and can no longer play travel lacrosse. But I know that her struggles have made her more empathic and resilient. 

When she returned home from the initial hospitalization, she was a nine-year old girl who had to re-learn how to walk, talk and eat. Processing her emotions by writing in a nightly journal helped her to heal. She eventually turned her journal into a book, My Hospital Story, to help other patients. Her published book become part of the teaching program in the pediatric residency at Children's National Hospital, and all the proceeds benefit the hospital. 

Her book is an example of how she turned her illness into a superpower - the ability to connect with patients and healthcare workers, while creating awareness about her rare disease. By telling her story she helped others understand that receiving a diagnosis was not a limitation but an opportunity to discover their superpower. 



Turning a Disadvantage Into Your Superpower

Turning a Disadvantage Into Your Superpower

When I think about my daughter's diagnosis, an incurable rare autoimmune disease which requires monthly infusions, I feel sad. She misses school for treatments, fatigues easil and cano no longer play travel lacrosse. But I know that her struggles have made her more empathic and resilient. 

When she returned home from the initial hospitalization, she was a nine-year old girl who had to re-learn how to walk, talk and eat. Processing her emotions by writing in a nightly journal helped her to heal. She eventually turned her journal into a book, My Hospital Story, to help other patients. Her published book became part of the teaching program in the pediatric residency at Children's National Hospital, and all the proceeds benefit the hospital. 

Her book is an example how she turned her illness into a superpower - the ability to connect with patients and healthcare workers, while creating awareness about her rare disease. By telling her story she helped others understand that a diagnosis was not a limitation but an opportunity to discover their superpower.